Wyatt is one year strong and fighting CCHS. C.C.H.S. is a lifelong multi-system disorder of the central nervous system where, most dramatically, the automatic control of breathing is absent or impaired. Wyatt currently requires a 24 hour ventilator via tracheotomy because of his insufficient breathing during wake hours and lack of breathing while sleeping. Hi…
Meet the extremely awesome Evan! Evan is a strong six year old diagnosed with CCHS shortly after he made his entrance in this world. C.C.H.S. is a lifelong multi-system disorder of the central nervous system where, most dramatically, the automatic control of breathing is absent or impaired. A CCHS patient’s respiratory response to low blood…
Meet Myles and his most beautiful family. Myles is a most handsome little man at two years of age. It is simple and pure. He loves his mommy and daddy and puppy dog, and they {love} him. His eyes and most beautiful smile will melt your heart and this tribute will simply warm your hearts….