Tiny Sparrow Foundation | A Non Profit Organization » A Picture of Hope

Joseph | New York

Meet Joseph and his family. Like most 8-year old boys, Joseph enjoys sports, Legos, and all things “boy.” Joseph has become very fond of baseball, and eagerly cheers on his brother Sean’s baseball team from the sidelines.

Although Joseph hasn’t been able to play baseball on a team yet due to his diagnosis of ALL-Leukemia, he steps up the plate every day, inspiring his family with his strength and independence.

After his diagnosis in 2013, “I can do this” has become Joseph’s mantra. Through his courageous attitude and the support of his family, Joseph continues to amaze his loved ones with resiliency in the face of hardship.

Joseph’s family admires how he encourages others, even those much older than himself, who are going through the same treatment. Joseph’s parents have taught him to cling to his faith, especially prayer, when he is scared or anxious. This tough little guy has not only persevered through his diagnosis, he has also impacted others with his contagious spirit along the way.

We are so proud of Joseph and wish him a long, happy and healthy life ahead.

Our deepest gratitude goes to Barbara Palumbo of Barbara Badetti Palumbo for donating her time and talent.

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Finn | Pennsylvania

Meet Finn and his family. This 5-year-old little boy is brave, courageous, outgoing, and full of life. Finn is always happy and cares so much about others. He loves superheroes and cars.

No matter what challenge is put before Finn, he always embraces it and puts a smile on his face. He works so hard on overcoming hurdles and never gives up!

At 2-years-old, he was diagnosed with apraxia of speech, which affects his ability motor plan and speaking.

At age 3 he was diagnosed with eosinophilic esophagitis, a chronic immune system disease. It has been identified only in the past two decades, but is now considered a major cause of digestive system (gastrointestinal) illness. After many failed food trials, he ended up with no safe foods and a G tube as his sole source of nutrition. He is currently trialing food again with the hopes of finding something safe he can eat orally.

Finn’s has 3 beautiful siblings. Finn’s brother Campbell also has the same two conditions. Together they are strong and mighty and cute as pie.

A very special thank you to Deb Kepiro of Annie Sharp Photography for donating her time and talent.

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Noah | Texas

Meet Noah and his family. Noah has been shining his light on Earth for nearly 3 years. His older brother and younger sister simply couldn’t love him anymore.

He likes to watch Frozen, Tangled, and Wreck It Ralph. His favorite song in the whole wide world is Twinkle Twinkle Little Star. So fitting, considering his smile could light up a sky full of stars.

He is a Miracle.

Noah has Pelizaeus-Merzbacher Disease (PMD) which affects the white matter in his brain. PMD is very rare, estimated to affect about 1 in 200,000-500,000 males. This means that his doctors have never seen or treated anyone with this condition. PMD does not have a cure. It is treated with symptom management and unfortunately, for Noah, his symptoms have been very severe.

Noah earned his angel wings on April 17, 2015, and his Celebration of Life service takes place today.

His family asked everyone to wear blue, which is the color for Leukodystrophy Awareness.

Noah was the bravest, sweetest, most joyful child—so innocent and pure of heart. Nothing will replace him, but the memories of love will live on forever. His parents take comfort in knowing he is no longer suffering while in Heaven, and instead “running and playing and laughing” like a boy his age should be.

We will honor, remember, and cherish sweet Noah Jack forever and ever.

A very special thank you to Jennifer Mayne of Jennifer Mayne Photography for donating her time and talent.

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Alexis | Texas

Meet Alexis and her family. These photographs only scratch the surface for all that Alexis is on a daily basis. Her love for others, her passion for family, and her strong bond for animals sums up her personality and what she means to those in her life.

When Alexis was diagnosed with Nevoid Basel Cell Carcinoma, she was told she would not be able to walk, talk, or function at all. However, overcoming odds is what Alexis does best. Her family has seen her grow and blossom into the beautiful young woman she is today—despite what others said would happen.

Not only is she walking and talking, but she also excels at everything she puts her mind to. In addition to being a member of her high school bowling team, Alexis is a Straight A student, a member of the National Honor Society, and was recently accepted into multiple universities; she will be attending University of Texas at San Antonio.

With all of her potential, Alexis can be anything she wants to be. So, what did she choose? A pediatric oncology nurse. Alexis wants, more than anything, to help those who are going through the worst. This compassion is nothing short of what her family would expect from her. Alexis is known to be caring and loving to those around her—always putting others before herself.  For this reason, and many more, her family hopes that she will reach all of her goals and see all of her dreams come true.

A special thank you to Chelsea Lietz of Chelsea Lietz Photography for her time and talent creating these beautiful images.

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They were a joy to work with and Alexis and beautiful and amazing and quietly funny! You are doing good things Tiny Sparrow!

Jackson | North Carolina

Meet Jackson and his family. His parents say that Jackson is pretty much like any other 3 year old, except he wears a backpack with his pump in it 24/7 and he takes multiple medications a day for his pulmonary hypertension.

He almost always has a smile on his face despite all that he has to go through. Jackson loves the normal boy things: Spiderman, superheros, monster trucks, tractors, and dinosaurs! One of his favorite things to do is play “punch, punch, punch” (play wrestling/boxing) with his daddy. His favorite cartoon is Tom & Jerry or Donald Duck, although he enjoys Mickey Mouse Clubhouse, Team Umizoomi and Bubble Guppies as well. He is adorable, joyful, loving, courageous, and inspiring.

Jackson was diagnosed with idiopathic pulmonary arterial hypertension (IPAH) on August 21st, 2012 when he was 14 months old. Pulmonary hypertension is when the small arteries (blood vessels) of the lung become narrowed and pressure builds up in them. The right side of the heart pumps blood through the lungs, where it picks up oxygen. Then, the blood returns to the left side of the heart, where it is pumped to the whole body. The heart needs to work harder to force the blood through the vessels against this pressure. Over time, this causes the right side of the heart to become enlarged. IPAH is rare. Usually in children they are able to find a cause, such as a hole in the heart or another heart condition that causes the PH. In Jackson’s case they have yet to find a cause, so they are considering it IPAH.

In the words of his mother, “We love him to the moon and back. He is my hero.”

A special thank you to Casey Tarpy of Casey Rose Photography for donating her time and talent.

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