Meet 9-year-old Madison and her beautiful family.
Madison is non-verbal and non-mobile without the ability to swallow. She has spastic quadriplegia, a subset of spasticcerebral palsy that affects all four limbs (both arms and legs). Her face is paralyzed leaving her unable to blink, close her eyes completely, and her mouth is always open. She has limited communication capabilities but has learned to use a switch and an iPad to communicate her needs. She also uses her breathing, crying, and setting off her vent alarms to also communicate with her family.
Her mom shared, “She is the light of our lives, an amazing miracle, and the strongest person I know! She has made our lives so much better in so many ways and her strength is beyond anything I could ever have imagined.”
Madison loves to spend time with family and loves to be outside. She is often called the “Princess Diva” because she wants to be the center of attention. She enjoys watching tv and listening to books on CD and music.
A heartfelt thank you to Staci Hedke of www.stacihedkephotos.com for donating her time and talent.