Meet Veronica. This 10-year-old sweet pea is a little ray of sunshine to everyone who crosses her path. She is the middle child and has both an older and younger sister — who both, in their own right — “look up” to Veronica.
Named after her father Ronnie, “Little Ronnie” came into this earth with more courage, more bravery, and more perseverance than many adults will possess in a lifetime.
Her parents expected a perfectly healthy baby through the pregnancy, but on the day of Veronica’s birth, a 2-page stapled paper was given to her Mommy and Daddy that read: Trisomy 13 is not compatible with life.
In that very moment, their lives would be changed forever. Trisomy 13, also called Patau syndrome, is a chromosomal condition associated with severe intellectual disability and physical abnormalities in many parts of the body. It is considered very rare. Due to the presence of several life-threatening medical problems, many infants with Trisomy 13 die within their first days or weeks of life. Only five percent to 10 percent of children with this condition live past their first year.
So as you can imagine, Veronica has quite literally defied the odds and recently celebrated her 10th birthday. She can not talk, walk or speak and is G-tube dependent. She needs medical assistance 24-hours a day. She has been a warrior through several surgeries over the course of her life. But her smile, oh her smile is everything. She absolutely loves music, her family, and is cherished beyond measure.
When asked what is her biggest fear, Veronica’s Mother said that maybe they didn’t do enough. But it’s evident by their daughter’s exceptionally longer life span, coupled by the transcendent light in Veronica’s eyes, that they have certainly done enough, and so much more. Fighting back tears, she explained, “All I care about is for her to be happy. She loves being in a social environment, she definitely lets us know when she’s happy by laughing and smiling. She is the strongest one of all of us.”
Our deepest appreciation and gratitude goes to Katie of Katie Cartwright Photography for selflessly donating her time and talent to this family: http://www.katiecartwrightphotography.com