Meet Noah and his family. Noah has been shining his light on Earth for nearly 3 years. His older brother and younger sister simply couldn’t love him anymore.
He likes to watch Frozen, Tangled, and Wreck It Ralph. His favorite song in the whole wide world is Twinkle Twinkle Little Star. So fitting, considering his smile could light up a sky full of stars.
He is a Miracle.
Noah has Pelizaeus-Merzbacher Disease (PMD) which affects the white matter in his brain. PMD is very rare, estimated to affect about 1 in 200,000-500,000 males. This means that his doctors have never seen or treated anyone with this condition. PMD does not have a cure. It is treated with symptom management and unfortunately, for Noah, his symptoms have been very severe.
Noah earned his angel wings on April 17, 2015, and his Celebration of Life service takes place today.
His family asked everyone to wear blue, which is the color for Leukodystrophy Awareness.
Noah was the bravest, sweetest, most joyful child—so innocent and pure of heart. Nothing will replace him, but the memories of love will live on forever. His parents take comfort in knowing he is no longer suffering while in Heaven, and instead “running and playing and laughing” like a boy his age should be.
We will honor, remember, and cherish sweet Noah Jack forever and ever.
A very special thank you to Jennifer Mayne of Jennifer Mayne Photography for donating her time and talent.