Meet Tyler and his family. This innocent nine-year-old with piercing blue eyes is battling Fanconi Anemia (FA), a very rare genetic disorder. FA is an inherited type of anemia that leads to bone marrow failure. Since being diagnosed, for the last 4 years of his life, Tyler has been preparing for the inevitable. The inevitable is a bone marrow transplant.
Though primarily considered a blood disease, FA may affect all systems of the body. It is a complex and chronic disorder that is psychologically demanding. FA is also a cancer-prone disease, affecting patients decades earlier than the general population. There is no cure for FA. Bone marrow transplants help people live a longer life, but can also create health problems with it.
A bone marrow transplant is a long, hard process. Tyler will have 2 weeks of testing, checking to make sure all his organs can handle all of the stress from medication. He will then have 5 days of chemotherapy and 1 day of radiation, and then will receive his new marrow cells! From that day on, he will get sores, pains, be bald, be tired, cold & hospitalized. He will have to stay in the hospital usually 20 or more days and then need to stay near the hospital for 100 days. During this process Tyler’s family will be relocating their temporary home to the local Ronald McDonald House.
In addition to being brave and courageous on a daily basis, Tyler enjoys cub scouts, playing cards, Legos, cars, and anything that has to do with reptiles. He loves his older brother Jeff, his younger brother Michael and younger sister Mallory.
We send Tyler light and love as he navigates this journey to taking his life back. Our deepest gratitude to Katey Pettengill of www.kateydidphotography.com for donating her time and talent to Tyler and his family.