Tiny Sparrow Foundation | A Non Profit Organization » A Picture of Hope

Cameryn | Massachusetts

Meet Cameryn and his courageous family. The truth is, this isn’t the first time we’ve had the honor of meeting them. Cameryn’s big sister, Lexi, is a Tiny Sparrow alumna from two years ago.

Their story goes something like this: Lexi has spent her entire 14 years struggling with Mitrochondrial Disease, a life threatening illness. Mitochondrial Disease results from failures of the mitochondria, specialized compartments present in every cell of the body except red blood cells. Mitochondria are responsible for creating more than 90% of the energy needed by the body to sustain life and support growth. It is often misdiagnosed for years depending on which cells are affected. Lexi defied medical odds, endured debilitating seizures, has collectively spent more time in the hospital than at home, and today lives with a central line and G-tube. Her little brother, Cameryn, watched her persevere all those years.

When Cameryn’s mother was pregnant with his little brother Ethan, 6 years ago, she found out she has the disease and so did her third child in the womb. The former neonatal intensive care nurse hasn’t been able to work since then. If that wasn’t enough?

Cameryn was diagnosed with the disease 2 ½ years ago. Needless to say, the news was scary considering what he experienced with Big Sis.

Today at 12-years-old, instead of playing with friends and competing in sports (his #1 favorite thing to do in the whole wide world), he also battles Gastroparesis, which means his stomach doesn’t empty properly. He’s said, “I just want to be a regular kid.”

When this young man grows up, he wants to be a professional athlete AND a Monk Seal researcher. Although he comes across as quiet and shy, once you get to know him, he’s bubbly and outgoing. We hope Cameryn will have the chance to pursue his dreams, and until then, never ever stop dreaming.

Thank you to Megan Belanger of http://www.meganbelangerphoto.com/ for her donating her time, talent and beautiful images of Cameryn’s family.

http://tinysparrowfoundation.org/?p=3604

 

Sparrow in the Spotlight

Cameryn answered a few questions for us and we are excited for you to get to know one of our heroes of {hope}.

What was your favorite part of your photo session with TSF? The favorite part of my photo session was being in a fun place with my mom, brother and sister. I got to trow rocks at the beach and collect shells.

Who is your favorite Superhero and Why? Batman

If you could be an animal, what animal would you be and why? Sea Turtle because I could live 150 years. It will be cool to see what’s in the ocean.

If you could have had anyone in the world join your photo session, who would that special person be? Kevin Durant and Lebron James

What was the best book you have read most recently? Allegiance

Most favorite place you have traveled? Why is it your favorite? Kauai, Hawaii, because I was able to research monk seals and do fun and cool things I have always dreamed of doing!

If you could learn how to do something new next week, what would you choose? Why? Hook shot in basketball because I want to be a professional someday.

If you could spend your time doing only one activity, what would that activity be? Why? Basketball because I love it and I want to be a professional player.

What is the most awesome thing you’ve ever seen? What made it so awesome? Being on the White House lawn for the Easter Egg Roll! All the activities that they had to participate in…it was awesome!!

What is your happiest memory? Disney Cruise

Why do you like being a kid? I like being a kid because I love learning and I learn new stuff everyday. I get to do a lot of fun things and go to cool places. I love having a lot of friends and hanging out!

One word to describe you would be: Funny.

What do you love most about your siblings?  I love that my siblings are funny, lovable and love to play. I love that we almost always get along and we are always telling funny jokes!!

Peter Flanagn

Cam is in almost all my school classes. He is very nice and friendly. I feel really bad that he has kept this a secret for so long. He needs to know that we all all in this together as friends. Good luck Cam!

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