Sophia is a bright, beautiful, 1 year old battling Zellweiger Syndrome, a peroxisomal metabolic disorder. Sophia gets food through a feeding tube and is unable to put pressure on her legs. She is beginning to make baby noises and move her head. Even while fighting a valiant battle, she continues to bring sunshine to the lives of everyone who knows her. Sophia continues to fill our world with smiles, joy, and a most tender love.
The beauty and gentleness between this family shines brightly through these beautiful images.
We extend a heart filled thank you to Kim of k.rae creations photographyfor her gift to Sophia’s family and our Foundation. Sophia’s mommy shared with us “we had a wonderfull time with the photographer. They were so kind to us. You picked the perfect photographer for our family. You couldn’t have picked a better one. Thank you again for this. It means so much to us.