Meet Makaeya. 5 year old Makaeya is battling Metachromatic Leukodystrophy, a genetic disorder that affects her nerves, muscles and other organs. She has no body control, and cannot walk, talk, or see. Despite the struggles this little girl faces every day, she shows her parents what bravery is all about and continues to stay strong. Makaeya loves her mommy and daddy, and shares a most special love with her little sister Myla. Makaeya loves it when her parents and sister shower her in kisses and hugs. Makaeya is quite simply a most beautiful girl with an amazing spirit, making this world brighter every day.
Makaeya, here is a thousand wishes of hope for you, sweet and courageous girl.
Our hearts are thankful for Jillian of Jillian McDermott Photography for her gift of the heart to Makaeya’s family and our Foundation.