At age 2 months, Owen was diagnosed with Leukodystrophy. Leukodystrophy is a progressive brain disease that has no cure. Owen is quite the little love who is a very sweet, cuddly little guy that fights through his illness that prevents his muscles from developing and has little to no muscle tone and no head control.
Owen has a big sister who, quite simply and so innocently, just loves on her little brother. As Owen’s mom shared on her blog she has created to celebrate the blessing he is in her life and also a means for her share this painful journey they are on, she shared “I really feel like Owen is hitting his stride. He seems so attune to the people around him. He is happy, he is eating, and he is tremendously loved” We would agree, that Owen is a most loved little beautiful and strong boy.
A heartfelt thanks to Jill Serrano for capturing love and tenderness from behind her lens.