Zichaela was born August 8th 2005 a healthy 8lb 6oz short little jelly bean. She hit every milestone as you would expect your child to, with the exception of a slight delay in her speech. She was your normal rambunctious, little miss attitude as a toddler.
On the evening of May 5th 2008, it seemed as if she was going to throw up, then she began turning blue, was limp and nonresponsive (her first seizure). For the next 9 months Zala went from 3-5 word sentences, to very few words at all. She was stumbling all the time, and was having many seizures.
In January 2009 Zala was diagnosed with Late Infantile Neuronal Ceroid Lipofuscinosis, or more commonly known as Batten Disease and that she would not live past 8-12 years old. At this time Zala can no longer walk, talk, is tube fed, and is going blind.
Beautiful pictures courtesy of Tamara Burross with From The Treetop Photography.